Autonomía, identidad e intimidad, las baldosas amarillas hacia ciudad Esmeralda. Una versión crip-apócrifa del Mago de Oz
DOI:
https://doi.org/10.37130/406s4f41Keywords:
functional diversity, disability, bioethics, personal assistance, sexual assistance, intimacy with assistance, collective imagination, The Wizard of OzAbstract
The article addresses the interaction between autonomy, identity, and intimacy in relation to the emancipation of persons with functional diversity. Personal assistance and sexual assistance are highlighted as essential material supports for the independent life of people with functional diversity, while emphasizing the key roles of culture, art, and the media in the construction of a collective imagination that should be realistic, diverse, and inclusive. Further, a concept of intimacy is proposed, where assistance is based on an anti-ableist bioethics (free abortion and euthanasia are defended against eugenic abortion and selective euthanasia currently in force), as well as on a radical conception of freedom of choice and of empathy and the abolition of the institutionalization of people with functional diversity. The text plays on drawing parallels between its key concepts (autonomy, identity, intimacy) and the characters of The Wizard of Oz (The Scarecrow, The Tin Man, The Lion), as well as between Dorothy’s desire to return home and the will for empowerment of people with functional diversity.
References
Baum, L.F. (1987) El Mago de Oz. Traduccion de Gerardo Espinosa. Spain: Salvat Alfaguara, Biblioteca Juvenil.
Campbell, F.K. (2009) The Contours of Ableism: The Production of Disability and Abledness. New York: Palgrave Macmillan.
Chandler, E. (2018) Disability Art and Re-worlding Possibilities, Auto/Biography Studies 33(2), pp. 458-463.
Clos, C., Deulofeu, G. (2014) Sensuales: relatos de sexo y afecto en la discapacidad. Barcelona: Comanegra.
Curcoll i Gallemí, Ma. L. (2006) “Sexualidad y traumatismo craneoencefálico,” Sobre ruedas, no. 64, pp. 6-9.
Gutiérrez Bermejo, B. (2010) Habilidades sociosexuales en personas con discapacidad intellectual. Madrid: Pirámide.
Johnson, M.L. and McRuer, R. (2014) “Cripistemologies: Introduction,” Journal of Literary and Cultural Disability Studies 8 (2):127-147.
Lázaro Cabezón, O. (2005) “Sobre personas sexuadas con discapacidad en un centro residencial (o sobre nuestra sexuallidad y la convivencia),” Revista de servicios sociales y política social, no. 69, pp. 49-64.
Linton, S. (1998) Claiming Disability: Knowledge and Identity. New York: NYU Press.
López Sánchez, F. (2005) “La educación sexual de personas con discapacidad,” Siglo cero, vol. 37(1), no. 217, pp. 5-22.
Martín Ramos, J. J. (2007) “Sexo y discapacidad,” Polibea, no. 83, pp. 28-30.
McRuer, R. (2006) Crip Theory: Cultural Signs of Queerness and Disability. New York: NYU Press.
Mollow, A. (2012) “Is Sex Disability? Queer Theory and the Disability Drive,” in McRuer, R. and Mollow, A. (eds.) Sex and Disability. Durham: Duke University Press, pp. 285-312.
Mosteiro Vilar, O. (2008) Tots som iguals i alhora diferents: manual d’educació sexual per a discapacitats. Barcelona: Universitat de Barcelona.
Nuss, M. (2008) (ed.) Handicaps et sexualités: le livre blanc . Paris: Dunod.
Olavarrieta, S., Darín, L., Suárez, P., Tur, N., Besteiro, B. and Gómez-Jarabo, G. (2013). “Actitudes hacia la sexualidad, esterilización, maternidad/paternidad y habilidades de crianza de personas con discapacidad intelectual: un estudio preliminar,” Siglo cero, vol. 44 (4), no. 248, pp. 55-69.
Verdugo A., Miguel Á., Fortuny Roquer, L. (2008) “Discapacitat intellectual, treball i sexualitat,” in Lamrabet, A. and Carbonell, F. El vel a l’escola. Girona: Observatori d’Ètica Aplicada a la Intervenció Social, pp. 103-128.
White, E. (2011) Dementia and Sexuality: The Rose that Never Wilts. London: Hawker.
White, T.R. and Hede, A-M. (2010) “Using Narrative Inquiry to Explore the Impact of Art on Individuals,” The Journal of Arts Management, Law, and Society, 38(1):19-36.
Bamford, S-M. The Last Taboo: A Guide to Dementia, Sexuality, Intimacy and Sexual Behaviour in Care Homes. London: International Longevity Centre - UK, 2011 [Online]. Available at https://ilcuk.org.uk/wp-content/uploads/2018/10/pdf_pdf_184.pdf (Accessed 15 April 2023).
Betevé. Trèvols de 4 fulles (2018) [Online video]. Available at https://www.youtube. com/playlist?list=PL2rLjs4qtscwhMqVwByWXqRACEl-jGDBK (Accessed 10 April 2023).
Ortiz, A. C. Políticas del deseo [Online]. Available at https://asistenciasexual.org/ politicas-del-deseo/ (Accessed 20 April 2023).
De óxido y hueso (2021) Directed by Jacques Audiard [Film]. Vértigo Films.
Disability Culture Rap (2000) Directed by Cheryl Marie Wade and Jerry Smith [Film]. St. Paul: Advocating Change Together.
I Jornada sobre sexualitat i diversitat funcional: una sexualitat diferent? (2012) [DVD Film]. Barcelona: ADIMO.
Teresa Palahí (2016) Directed by Sandra Balagué [Film]. Barcelona: Institut Català de les Dones: VilaWeb.
The Wizard of Oz (1939) Directed by Victor Fleming, George Cukor, Mervyn LeRoy [Film]. Culver City, CA: Metro-Goldwyn Mayer Studios.
Touch Me Not (2018) Directed by Adina Pintilie [Film]. Bucharest: 4 Proof Film.
Vivir y otras ficciones (2016) Directed by Jo Sol [Film]. Spain: Shaktimetta Produccions. 8. Yes, We Fuck! (2015) Directed by Antonio Centeno and Raúl de la Morena [Film]. Barcelona: Barcelona Independent Living.